Revealed!Major health challenge of persons with Albinism

The Anambra State Albinism Association (ASAA) has identified skin cancers as the major health challenge faced by people with albinism.

 

Miss Vivian Ezeonwumelu, the state Chairperson, ASAA, said this in an interview with the News Agency of Nigeria (NAN) on Thursday in Awka, in commemoration of the 2023 International Albinism Awareness Day.

 

International Albinism Awareness Day is marked every June 13 to promote awareness and understanding of the genetic condition of persons with albinism in society.

 

Ezeonwumelu described Albinism as a genetic disorder characterised by a lack of skin pigmentation or Melanin which appears to be the most important risk factor in the development of skin cancers.

 

According to her, Melanin protects the skin from the harmful effects of ultraviolet radiation.

 

“The lack of Melanin predisposes Albinos to various degrees of skin problems. Therefore, sun protective measures are key to the prevention of skin cancers.

 

“People with albinism need to take extra precautions to avoid sunburn and skin damage.

 

“People with albinism also suffer from vision problems, which can range from mild to severe. They also encounter discrimination and stigmatisation.

 

“In some cultures, people with albinism are believed to have magical powers or are considered cursed. This can lead to social exclusion, harassment and even violence,” she said.

 

Ezeonwumelu said that provision of quality education, sun protection, vision care, employment opportunities, advocacy, legal support and protection, could help Albinos overcome their challenges and live fulfilled lives.

 

 

She urged the state government, organisations and community leaders to work together to promote inclusion, acceptance and equal opportunities for people with albinism.

 

“The inclusion of persons with albinism in all sectors of life is not just a moral obligation, it is also a legal and human rights imperative,” she said.

 

She appealed to the state Ministry of Education to make a policy to allow children with albinism to sit in front of the classrooms as well as plant trees to provide shade for them.

 

She also urged persons with albinism to avoid self-pity and not limit themselves irrespective of the discrimination faced in society.